Sorry everyone, we are here... We were in hospital all day Wednesday and came home on Thursday... Franco was all set to have a stent inserted to help move the bile fluid out of his body, which is severely debilitating him... The anaesthetist came to see us, checked Franco over, then the doctor came to say the operation would not take place and we were to go home, and come back for the operation, two weeks later... was a bit of a blow... it is something that needs doing, and everyday is making Franco more tired, and the fluid build up worse and worse.
So we came home Thursday, family had arrived Wednesday and Thursday morning, we all got down to our favorite pizza restaurant in town, Franco using his scooter, for the past few days though Franco has been more tired, he has been awake more with our family staying, but therefore more tired... we always try to do more when we have visitors, sometimes their visits take a week or two to recover from... Especially if we're out and about every day, taking people to all our favorite places... then we need a holiday afterwards.... Of course, this wasn't the regular visit... But Franco still tried to be more awake than asleep.
Yesterday we had an early wake up when the family left, and got a couple of hours of sleep until 7am when the alarm went off! Meds have to be taken on time, and if we don't start at the right time its all knocked out of sync for the rest of the day, but we caught up with some naps, Franco more so... And Franco also had lots more to eat yesterday and a good breakfast already today... meds are his huge bugbear... Franco has never been a pill-taker... its always me who has had to take something or other, tables turned big time now, thankfully its only that he doesn't want to take them, and not that he finds it hard to swallow them!
We have some huge foam pieces on the terrace benches, [that Franco made], Franco had had a good sleep on one earlier in the week, so we brought one down, I covered it, and Franco had about three hours sleep on that yesterday afternoon, really comfortable, and we stood it up on the back of the sofa and Franco slept well last night, we went to sleep about 11pm and woke up with the alarm at 7am... Franco did wake me up for some food about 4am, but then we decided to wait until a bit later or the meds would be too out of sync...
Yesterday evening Franco said as we were watching TV and talking... "your my 1 to 1 carer, like your job in the UK... only we're not getting paid for it!" lol.... true I guess... Although I did point out that I am caring for him out of love not money! and that I don't think of it as work, and that I wouldn't have it any other way... except all of this NOT happening at all would be the best thing!
For a couple of nights we were back downstairs in the dining room and den, but yesterday Franco wanted to come back up to the living room where he wanted to be again... nearer the bathroom and halfway up to the terrace too of course, and today should be warm again so when the suns on the terrace maybe we'll get up there... Franco said the other day to me that he didn't think he would get up there again after he came down into the dining room... He will!
The doctors came again to visit with us and talk to us about what had happened in hospital and what happens next, they also organised a mattress for Franco, which the next day... Friday, I went up to the clinico here in town to collect, its an air mattress lots of small pockets filled constantly with air, but Franco didn't find it comfortable at all! Which is why we got the foam down from the terrace!
We're sitting relaxed and comfortable now, up in the lounge, Pippa asleep on my left and Franco on my right, its only 9:30am, all meds done for morning, house clean and tidy...
So we came home Thursday, family had arrived Wednesday and Thursday morning, we all got down to our favorite pizza restaurant in town, Franco using his scooter, for the past few days though Franco has been more tired, he has been awake more with our family staying, but therefore more tired... we always try to do more when we have visitors, sometimes their visits take a week or two to recover from... Especially if we're out and about every day, taking people to all our favorite places... then we need a holiday afterwards.... Of course, this wasn't the regular visit... But Franco still tried to be more awake than asleep.
Yesterday we had an early wake up when the family left, and got a couple of hours of sleep until 7am when the alarm went off! Meds have to be taken on time, and if we don't start at the right time its all knocked out of sync for the rest of the day, but we caught up with some naps, Franco more so... And Franco also had lots more to eat yesterday and a good breakfast already today... meds are his huge bugbear... Franco has never been a pill-taker... its always me who has had to take something or other, tables turned big time now, thankfully its only that he doesn't want to take them, and not that he finds it hard to swallow them!
We have some huge foam pieces on the terrace benches, [that Franco made], Franco had had a good sleep on one earlier in the week, so we brought one down, I covered it, and Franco had about three hours sleep on that yesterday afternoon, really comfortable, and we stood it up on the back of the sofa and Franco slept well last night, we went to sleep about 11pm and woke up with the alarm at 7am... Franco did wake me up for some food about 4am, but then we decided to wait until a bit later or the meds would be too out of sync...
Yesterday evening Franco said as we were watching TV and talking... "your my 1 to 1 carer, like your job in the UK... only we're not getting paid for it!" lol.... true I guess... Although I did point out that I am caring for him out of love not money! and that I don't think of it as work, and that I wouldn't have it any other way... except all of this NOT happening at all would be the best thing!
For a couple of nights we were back downstairs in the dining room and den, but yesterday Franco wanted to come back up to the living room where he wanted to be again... nearer the bathroom and halfway up to the terrace too of course, and today should be warm again so when the suns on the terrace maybe we'll get up there... Franco said the other day to me that he didn't think he would get up there again after he came down into the dining room... He will!
The doctors came again to visit with us and talk to us about what had happened in hospital and what happens next, they also organised a mattress for Franco, which the next day... Friday, I went up to the clinico here in town to collect, its an air mattress lots of small pockets filled constantly with air, but Franco didn't find it comfortable at all! Which is why we got the foam down from the terrace!
We're sitting relaxed and comfortable now, up in the lounge, Pippa asleep on my left and Franco on my right, its only 9:30am, all meds done for morning, house clean and tidy...
You are a true angel Marian, you are clearly doing everything you can for Franco. Send him our love and very best wishes. Andy, Tanya & Amy xxx
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